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Being a Mother and an Advocate
When her son Daniel wasn’t hitting physical milestones at age two, Jane Winslow began a long journey of advocacy. Despite doctors dismissing her concerns, she pushed for answers, eventually securing a rare diagnosis—Dup15Q syndrome—at Boston Children’s Hospital. At the time, few cases were known. Jane fought for resources, schooling, and understanding, and today, thanks to the Dup15Q Alliance, families have a support system she never had.
Stasia Winslow
Jun 21, 20253 min read
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